Well Pop and I made it to the Hope Lodge without incident. Traffic wasn't bad at all making the drive pretty easy although Pop seemed restless. He said he felt OK just couldn't get comfortable. Once unpacked we went down to the dining area to have some supper. Shannon sent a subway sandwich but Pop said he felt tired and only ate a few bites. I gave him a hard time about not eating but he promptly let me know he wasn't going to eat if he didn't feel like it. Told him he was gonna eat on my watch if I had to hold him down ..... Pop said something about not being scared of me, kinda giving me that look. He headed up to the room soon after. I could tell he was not feeling right. I talked with the guy from the Cayman Islands a little while, he is an interesting fella and loves to talk. Once I got back to the room Pop let me know that the 3 bites he did eat didn't stay down. He tried some of his nasea meds and they didn't stay down either. Once he got where he could, Pop tried another nasea med and laid down to rest. Said he would try to eat later if he could but at this point he wanted his stomach to settle down a little. He hasn't eaten anything and said he didn't feel all that ill just weak on the stomach. With the nasea medicine not working and him not taking any other meds this weekend, I'm wondering if it is nerves. He was dreading the trip. I pray that if it is.....that nerves would be calmed. We will see how Pop feels in the am as he has another big day tomorrow. Until then; keep the prayers comin and continue to
Love God; Love people
TW
Joshua 1:9
Sunday, November 29, 2009
Thankful for a great Thanksgiving Weekend!
This weekend has been very good. We all appreciated Uncle Doc and Aunt Judy taking Pop to his treatment on Friday. Saturday was another great day with some great Gator football. Pop snacked all day. Let's see, he ate a cinnamon roll, a coke float, corn meal soup with chicken gizzards cut up in it, popsicles, shrimp, and few crab legs, and finished it off with half of a nutrigrain bar. Pretty good day. No nausea. He started today with a two egg omelet with bacon, that btw he cooked for himself because I slept in way too late. So those are all good things. This afternoon he and Terry will head back over to the Hope Lodge to get ready for another week, and I will relieve Terry tomorrow. Sonya has been the anchor at work keeping it all together there because Lord knows I haven't been able to focus very well.
Overall, the only complaint by Pop this weekend is tenderness in his throat. I guess that sunburn on the inside is beginning. It hasn't stopped him from eating though. We thank God for that and pray for another great week.
Overall, the only complaint by Pop this weekend is tenderness in his throat. I guess that sunburn on the inside is beginning. It hasn't stopped him from eating though. We thank God for that and pray for another great week.
Friday, November 27, 2009
13 DOWN, 22 to go...
To Moffitt Cancer Center for the day for radiation treatment #13 with Aunt Judy and Uncle Doc! So far, so good! Now home for the weekend. At least until Sunday evening!
Artwork at the Hope Lodge and Moffitt
Youth from the Greek Orthodox Church that came and sang songs one night!
The pictures below are actually ceiling tiles from the dining hall at he Hope Lodge that kids created.
Below are some quilts that are located on the walls of the dining room of the Hope Lodge
Thursday, November 26, 2009
Wednesday, November 25, 2009
Good Evening! 12 DOWN, 23 to go...
When I came back to the room Pop was actually reading a Reader's Digest magazine trying to find something to do.
For lunch Pop ate a frozen dinner that consisted of turkey, dressing, green peas, and mashed potatoes. He cleaned his plate. He also ate a couple slices of pickles, a few crackers, some sips of pepsi, and a banana popsicle. So far so good!
Then it was radiation treatment time. While he was in there I sat in the waiting area doing a little more reading from the Coping magazine. I found a couple interesting things that included some common sayings in this blog. The first article was called Lessons Learned. It was an article about one of the Miss America winners from back in 1967 who battled cancer. She said:
Putting my trust in God didn't make life easy, but it provided resources for hope and meaning. She went on to say: I've been blessed with a wonderful life. I've won awards, worn some crowns, stood on big stages, dressed in marvelous gowns, and carried impressive titles next to my name. I'm grateful for all of that, but cancer puts it in perspective. Loving God, loving people, and being present each day are the real miracles of life.
The second article was titled "It is what it is". The author wrote:
But it is what it is. I don't let cancer stop me from doing what is important. I try not to focus on the things that I may not experience in life. Instead, I focus on what I am experiencing - right now.
Happy Thanksgiving to all of you!
Toni
For lunch Pop ate a frozen dinner that consisted of turkey, dressing, green peas, and mashed potatoes. He cleaned his plate. He also ate a couple slices of pickles, a few crackers, some sips of pepsi, and a banana popsicle. So far so good!
Then it was radiation treatment time. While he was in there I sat in the waiting area doing a little more reading from the Coping magazine. I found a couple interesting things that included some common sayings in this blog. The first article was called Lessons Learned. It was an article about one of the Miss America winners from back in 1967 who battled cancer. She said:
Putting my trust in God didn't make life easy, but it provided resources for hope and meaning. She went on to say: I've been blessed with a wonderful life. I've won awards, worn some crowns, stood on big stages, dressed in marvelous gowns, and carried impressive titles next to my name. I'm grateful for all of that, but cancer puts it in perspective. Loving God, loving people, and being present each day are the real miracles of life.
The second article was titled "It is what it is". The author wrote:
But it is what it is. I don't let cancer stop me from doing what is important. I try not to focus on the things that I may not experience in life. Instead, I focus on what I am experiencing - right now.
Happy Thanksgiving to all of you!
Toni
Good morning!
Today we pretty much slept in until about 8:30am. Then about 9am we went to the kitchen/dining hall and made some breakfast. Pop wanted an omelette today, but it ended up as a one egg scrambled with bacon. He ate all of that along with a glass of orange juice and some grapes. So far so good! It is all staying on the inside right now = ] Pop is resting while I am updating this website and also doing laundry!
Tuesday, November 24, 2009
Sierra pushing Pop's button
Here is Sierra "pushing Pop's button" . The man with the "cancer sucks" button inspired us to get our own. We put it on Pop last night for a picture and he hasn't taken it off. He even put it on his new shirt this morning. I think its kinda funny as we all hate that saying (and he and mom would have had a cow if we would have used it in public) but he said tonight that this phrase pretty much sums it up.(btw the button is white as white signifies lung cancer)
Just a little about today.
Beginning to think this caregiver thing is a little lopsided. How so? I spent last night and most of the day with Pop ...me mostly working on my computer or phone and him mostly sleeping and resting. Yesterday was a big day that started out kinda yucky with Pop not feeling well. When I got to Moffitt yesterday afternoon/evening he was feeling much better and then we had the great supper I was telling you about. For the most part he had a good night and today was good as well. He ate a good breakfast ... rested ...... and then ate a good lunch ....rested again and went to his treatment late this afternoon. As Toni just posted he also ate a great supper. Now about this lopsided thing. Everytime I have been to spend the night ...Pop has felt pretty good. Heck I even facetiously commented last night on my post that this care giver thing was rough .... but someone had to do it. Then Shannon reminded me this evening that between the good times it hasn't been a piece of cake. Don't get me wrong .... she wasn't complaining a bit she was just reminding me as I was on the moutain peaks that there had been the valleys. It doesn't seem fair that her and Sonya have been at Hope at the times Pop has been the sickest. Sonya even mentioned it the other day when I relieved her....just as Pop was beginning to feel better. I have been the lucky one I guess ... either that or God knows .... maybe I'm just not as good a caregiver as my sisters. He maybe has been looking after and spareing me and Pop both. I'm positive I could not handle him being sick for hours. I'm not sure why but thats just the way it has fallen and its not fair .... but as I was listening to a recording of a testimony given recently at FBCLP on the way over this week ..... it was all about life not being fair. And that its OK cause although life is not fair in our eyes ...God paints on a bigger canvas than we can see ... and He knows what we can handle ...what we need ....and He provides. God sees the bigger picture. The speaker said something else that just resonated with me. To be perfectly honest and open, God and I have been tussling about this cancer thing .....and my biggest problem is .... that its not fair. And in my quiet times.....the times I use to connect with God, I have been throwing a fit with Him about it. And this amazing speaker admitted in her testimony that she had been throwing fits too.......we all do. But our God is big enough to handle our fits......so go right ahead and throw em. I want to say a special thank you to the speaker (she knows who she is) for permission to throw my fit and the reassurance that God understands.
If I thought it was something I could do .... that God was blessing me with the good times with Pop ... I'd lobby to stay with him constantly so he would feel good all the time. I certainly want His treatment to be as easy as possible. But I think its just chance and I know my time is coming to walk the valley with Pop. I just hope and pray I can do as good a job as my sisters.
Let's love God and love people
TW
If I thought it was something I could do .... that God was blessing me with the good times with Pop ... I'd lobby to stay with him constantly so he would feel good all the time. I certainly want His treatment to be as easy as possible. But I think its just chance and I know my time is coming to walk the valley with Pop. I just hope and pray I can do as good a job as my sisters.
Let's love God and love people
TW
Tuesday Evening - 11 DOWN 24 to go...
It was nice having my whole family here today (Terry, Sam, Sierra, Nevada, and myself). While Pop finished up his 11th radiation treatment we all went and found the gift store, cafeteria, etc. and just showed them around. Sierra and I later checked out some interesting artwork and their narrations. The artwork was done by cancer patients and caregivers. Very interesting. I will post some pictures of these when I am back home. Sierra and I also noticed a neat saying in the waiting room.
You're braver than you believe, stronger than you seem, and smarter than you think. Christopher Robin
After Pop's treatment was done we were able to attend the Tuesday night pot luck supper. Everybody brings something! I bet you can guess what we brought? BBQ ribs from the Truck Stop! Everyone seemed to enjoy them! We also had chicken 'n dumplings, salad, and some other things. Pop seemed to eat pretty good! The kids and Terry also stayed to eat. Nevada drank some of Pop's boost since he doesn't really care for them.
Well, the rest of the family left after dinner and so Pop went back up to rest and I played bingo (no prizes tonight so not many people stayed). Pop later came down and ate an orange and listened to the youth group that was visiting and singing songs. They sang "Trading My Sorrows" and "Heart of Worship". They even brought a guitar! I think he enjoyed it! Later on the guy from the Cayman Islands told me about his cancer and also about some of the other people here. It seems like the people here are truly a support system for each other. They care so much about each other. In fact, the Cayman Island guy said he thinks Pop is a very nice man. I told him that we already knew that!
Signing off for now = ] Thanks to all of you for the support you have been giving to all of us!
Toni
You're braver than you believe, stronger than you seem, and smarter than you think. Christopher Robin
After Pop's treatment was done we were able to attend the Tuesday night pot luck supper. Everybody brings something! I bet you can guess what we brought? BBQ ribs from the Truck Stop! Everyone seemed to enjoy them! We also had chicken 'n dumplings, salad, and some other things. Pop seemed to eat pretty good! The kids and Terry also stayed to eat. Nevada drank some of Pop's boost since he doesn't really care for them.
Well, the rest of the family left after dinner and so Pop went back up to rest and I played bingo (no prizes tonight so not many people stayed). Pop later came down and ate an orange and listened to the youth group that was visiting and singing songs. They sang "Trading My Sorrows" and "Heart of Worship". They even brought a guitar! I think he enjoyed it! Later on the guy from the Cayman Islands told me about his cancer and also about some of the other people here. It seems like the people here are truly a support system for each other. They care so much about each other. In fact, the Cayman Island guy said he thinks Pop is a very nice man. I told him that we already knew that!
Signing off for now = ] Thanks to all of you for the support you have been giving to all of us!
Toni
Monday, November 23, 2009
Monday evening ~ 10 down 25 to go
Got here this evening as Pop was wrapping up his radiation treatment. Shannon and I had to practically jog to keep up with him on the way back to the Hope house. Well ..... maybe not jog but more like a fitness walk. Told him he wasn't glowing yet from all the radiation but that he acted like he was nucleared powered as fast as he was walking. It was certainly good to see him walking, joking, and acting like Pop. We made it back in time to partake in a Thanksgiving feast cooked by a local group here in Tampa. The whole spread ...... turkey, dressing, ham, beans, corn, biquits, salad .... its a rough life as Pop's caregiver.
Shannon and I made our way into the kitchen area to experiment. See .... Pop has lost too much weight and the Weaver children are determined to fatten him back up. Nothing has tasted good to him and it has been a bit of a struggle to get him enough nutrients in small amounts let alone getting him to keep it down. Many of you don't know ( and now I guess is as good a time as any to tell you) that Pop is a bit hard headed when it comes to eating sometning he doesn't like, so we are determined to mix and mingle any combination to trick him to eat. Toni had sent some banana and berry ensure and Shannon had bought some thickening gel that is used to mix with boost and ensure to make it like a pudding.
Our first concoction was banna creme ensure with the gel .... in hopes of making a banana pudding. Well ..... it smelled good ....... Shannon said like a banna popsicle. As for the taste I thought if we cut up a few bananas and added some vanilla wafers ... we might have something. Pop said don't waste the bananas. The ladies at the table next to us laughed at us and offered us suggestions. Shannon tried a carnation vanilla instant breakfast mixed with OJ and the gel. Tasted and looked like a dreamsicle, just had the consistency of a puddin. Frozen I believe I could eat it. It wasn't that bad and a whole lot better than the banana pudding. Pop was still working on his turkey and dressing and made the comment that if he ate enough regular food he wouldn't have to eat that...... pudding. He ate a great supper..... more than I have seen him eat in a while. Wonder if our determination is paying off?
After supper the folks that prepared the meal started up a bingo game but we passed. Shannon wanted to play but knew she had to make her way back to Lp before it got too late so we made our way back to the room, fortunate that Pop felt pretty good, no nasea.
Laziness on my part and I think exhaustion on Pops, he and I laid around the room several hours tonight just talking about all the blessing we have experienced in our life. It was really good to hear that in all the "stuff" he had encountered, all he could really remember or that would come to mind was the good stuff. Pop said that he had to really concentrate and think to get the hards times to come to mind and even then he couldn't remember all the details. This was probably the first time as father and son we have just set and talked about our life ..... and brought up things we were blessed with and really thankful for. For two hours, I guess the main topic was friends and family ...... other than God ..... the only other things that really matter in life. Pop commented that he believed he was the wealthiest man in Highlands county ..... not rich in money ..... but the wealthiest. He paused a while ..... and I was silent ...... letting it sink in. He finally broke the silence and said ..... yea .. I really believe that. Not much I could say as I had to agree to some degree, although being his son ...... I would have to say ..... growing up with a man such as Pop being my dad, my mentor, my hero ....... that would probably make him the second wealthiest man next to me. God couldn't have blessed me in the care of a better man.
Pop is now resting easy after a long day of treatment. And after our talks tonight I realize that .... what I am about to say as I sign off tonight has been taught to us Weaver kids many different ways ..... through many different circumstances. Love God, love people ...... it's not only what Jesus taught us ...... its also what Sam and Reba Weaver taught us through example. What more could a kid ask for?
TW
Shannon and I made our way into the kitchen area to experiment. See .... Pop has lost too much weight and the Weaver children are determined to fatten him back up. Nothing has tasted good to him and it has been a bit of a struggle to get him enough nutrients in small amounts let alone getting him to keep it down. Many of you don't know ( and now I guess is as good a time as any to tell you) that Pop is a bit hard headed when it comes to eating sometning he doesn't like, so we are determined to mix and mingle any combination to trick him to eat. Toni had sent some banana and berry ensure and Shannon had bought some thickening gel that is used to mix with boost and ensure to make it like a pudding.
Our first concoction was banna creme ensure with the gel .... in hopes of making a banana pudding. Well ..... it smelled good ....... Shannon said like a banna popsicle. As for the taste I thought if we cut up a few bananas and added some vanilla wafers ... we might have something. Pop said don't waste the bananas. The ladies at the table next to us laughed at us and offered us suggestions. Shannon tried a carnation vanilla instant breakfast mixed with OJ and the gel. Tasted and looked like a dreamsicle, just had the consistency of a puddin. Frozen I believe I could eat it. It wasn't that bad and a whole lot better than the banana pudding. Pop was still working on his turkey and dressing and made the comment that if he ate enough regular food he wouldn't have to eat that...... pudding. He ate a great supper..... more than I have seen him eat in a while. Wonder if our determination is paying off?
After supper the folks that prepared the meal started up a bingo game but we passed. Shannon wanted to play but knew she had to make her way back to Lp before it got too late so we made our way back to the room, fortunate that Pop felt pretty good, no nasea.
Laziness on my part and I think exhaustion on Pops, he and I laid around the room several hours tonight just talking about all the blessing we have experienced in our life. It was really good to hear that in all the "stuff" he had encountered, all he could really remember or that would come to mind was the good stuff. Pop said that he had to really concentrate and think to get the hards times to come to mind and even then he couldn't remember all the details. This was probably the first time as father and son we have just set and talked about our life ..... and brought up things we were blessed with and really thankful for. For two hours, I guess the main topic was friends and family ...... other than God ..... the only other things that really matter in life. Pop commented that he believed he was the wealthiest man in Highlands county ..... not rich in money ..... but the wealthiest. He paused a while ..... and I was silent ...... letting it sink in. He finally broke the silence and said ..... yea .. I really believe that. Not much I could say as I had to agree to some degree, although being his son ...... I would have to say ..... growing up with a man such as Pop being my dad, my mentor, my hero ....... that would probably make him the second wealthiest man next to me. God couldn't have blessed me in the care of a better man.
Pop is now resting easy after a long day of treatment. And after our talks tonight I realize that .... what I am about to say as I sign off tonight has been taught to us Weaver kids many different ways ..... through many different circumstances. Love God, love people ...... it's not only what Jesus taught us ...... its also what Sam and Reba Weaver taught us through example. What more could a kid ask for?
TW
Monday morining
Well, Pop didn't eat as well as I would have liked on Sunday but at least he held it all down. I wish I could say the same for this morning but I can't. He ate very little breakfast and lost it all before we ever made it to the first appointment. We fought our way through the lab work and then the doctor's appointment. We only had about an hour and a half before he was scheduled for his infusion and he didn't want to walk all the way back over to the Hope Lodge and have to turn around and come right back. We decided to hang out in the waiting room until time for the appointment. I found a blanket and folded it on top of my bag for a pillow so he could lay down on the couch. This waiting room is huge and you see people basically laid out all over the place. I understand why now. After a cat nap he sat up and felt nauseous again. I headed back to the room to get is nausea meds and he headed to the rest room. When I came back he had a garbage bag that he took from the restroom sitting beside him. He had not gotten sick but brought the bag just in case. I had to laugh at him. I guess when you feel sick, you have no shame. In that waiting room no one even gave him a second glance because I am sure they all understand. They finally called him back and started his IV. They administer Benadryl to him first before the trial meds. The Benadryl makes him sleepy so I was hoping they would bring lunch and he could eat a little before he started dozing, and they did. He slowly ate a ham sandwich, a bag of chips, and a box of raisins. The chips were good to him so I went and bought another bag from the cafeteria. He also ate two pickle slices which I had brought in my bag. He was able to keep it all down by just eating a few bites and then dozing. I told him from now on I was gonna keep feeding him benadryl and just wake him up enough to eat. It is 3:30 now and we are back at the room and he is SNORING. He has to be back for radiation at 4:30 so he can keep snoring for now. I will update later today. Shannon
Sunday, November 22, 2009
Weekend Update
Saturday was a very good day. Pop ate very good and didn't feel any nausea. He slept well last night also. Later this afternoon we will pack back up and head back to Tampa. I am thankful he has been able to eat well this weekend because tomorrow is a big day. He has a total of four appointments. The first is at 8:00 and the last is at 4:30. Hopefully he will have time to rest some in between appointments. It has been a good weekend and we thank God for that. Thanks for your continued prayers, support, and suggestions. We love you all, Shannon
Friday, November 20, 2009
Friday Afternoon
Got home to find Pop resting in his recliner. He is tired of me handing him stuff to try. He won't drink Boost or Ensure. Someone recommended Carnation Instant Breakfast. So today at work we experimented some. Carnation Instant Breakfast mixed well with orange juice. We tried grape juice... YUCK! Tanya suggested we try coke, I was skeptical but it wasn't too bad. It kind of tasted like a melted coke float. Dad is not a milk drinker so mixing it with milk was out of the question. So all afternoon I have been mixing stuff and handing it to him to try. The orange juice mixture was a hit. He has almost drank the whole thing. I guess radiation affects your taste. He says he has a "funky" taste in his mouth and smells a "funky" smell continuously. I am still open for suggestions if any of you have any as an alternative to Ensure or Boost. It can't be too sweet. Sweet stuff is not settling well. Thanks again for all your prayers! Shannon
Some Pictures
Pop talking on the Nextel
The den at the Hope Lodge
Another view of the den
The computer I used to update the blog
Part of the den9 Down and 26 to go...
This morning we got up early for an 8:00 am radiation appointment. Sam got to coughing a lot and got to feeling bad while I was making some toast, but he managed to come back to the table to eat one piece with some peanut butter on it. Then we headed over to his appointment.
While Sam was in the back I was able to just sit in the waiting area and listen to conversations. One guy, who was a caregiver to his wife, was encouraging another guy, who was a patient, who was waiting on his name to be called. The "patient" was telling the "caregiver" that he had experienced back surgery one year, a heart attack the next year, surgery to remove melanoma on his nose the following year, and this year it is lymphoma. What is next? The "caretaker" replied that he must be a great fighter and to just keep it up! Another guy in the room was a patient who got tired off all his long hair falling out (he was a biker with long gray hair) so he decided to get it cut "Mohawk style" just for the fun of it! He also said that his son called his hair the color of chrome. How appropriate for a biker!
As you sit in the waiting room and look at all the people you really recognize that cancer attacks all sorts of people, from all sorts of backgrounds.
The treatment seemed to go well, except for the normal "washed out" feeling afterwards. We headed back to the room, gathered our stuff and headed back to Lake Placid for the weekend (at least up until Sunday evening)!
Sam ate pretty good once we got to the Truck Stop: jello, grapes, and clam chowder.
While Sam was in the back I was able to just sit in the waiting area and listen to conversations. One guy, who was a caregiver to his wife, was encouraging another guy, who was a patient, who was waiting on his name to be called. The "patient" was telling the "caregiver" that he had experienced back surgery one year, a heart attack the next year, surgery to remove melanoma on his nose the following year, and this year it is lymphoma. What is next? The "caretaker" replied that he must be a great fighter and to just keep it up! Another guy in the room was a patient who got tired off all his long hair falling out (he was a biker with long gray hair) so he decided to get it cut "Mohawk style" just for the fun of it! He also said that his son called his hair the color of chrome. How appropriate for a biker!
As you sit in the waiting room and look at all the people you really recognize that cancer attacks all sorts of people, from all sorts of backgrounds.
The treatment seemed to go well, except for the normal "washed out" feeling afterwards. We headed back to the room, gathered our stuff and headed back to Lake Placid for the weekend (at least up until Sunday evening)!
Sam ate pretty good once we got to the Truck Stop: jello, grapes, and clam chowder.
Thursday, November 19, 2009
Bingo Night!
Well, this afternoon I spent time sitting on the porch and reading. Something I rarely do for pleasure, but a good time to start. I started reading from the book Chicken Soup for the Surviving Soul. The part that got my attention, as I was flipping through pages, was the story: Not Without A Fight. The quote that was listed was:
Life is what happens when you're busy making other plans. John Lennon
This kind of hit home because I am always trying to schedule everything. Well, the story went to talk about taking time to feel the breeze when you are outside and taking time to dip your feet in some cool water, just because. Simple pleasures bring great happiness. I realized how simple God's plan is, yet how complicated we humans make His earth.
Enough about that, except I want you to remember to enjoy the simple things in life.
A group of college students came in tonight to feed us chicken stir fry. Actually they are pre-med students. Pop ate everything on his plate except for half a cookie. Then he went up to the room for a little while. I stayed for the games (as Shannon suggested). Yes, it was BINGO tonight. Another group of students came in to do games. One guy was 6' 10" and Sam said he was more like 5' 22". He was hilarious! We figured he was a basketball player, but he played safety and punter for football. Go figure! I played a few games and did not win. Sam then came down and played a couple rounds. Well, we finally did win and we picked a photo frame as our prize (we would get a picture of all the grandkids to put in it). While we played our last game we also enjoyed a banana popsicle. Now it is time to rest!
We will see everyone tomorrow!
Life is what happens when you're busy making other plans. John Lennon
This kind of hit home because I am always trying to schedule everything. Well, the story went to talk about taking time to feel the breeze when you are outside and taking time to dip your feet in some cool water, just because. Simple pleasures bring great happiness. I realized how simple God's plan is, yet how complicated we humans make His earth.
Enough about that, except I want you to remember to enjoy the simple things in life.
A group of college students came in tonight to feed us chicken stir fry. Actually they are pre-med students. Pop ate everything on his plate except for half a cookie. Then he went up to the room for a little while. I stayed for the games (as Shannon suggested). Yes, it was BINGO tonight. Another group of students came in to do games. One guy was 6' 10" and Sam said he was more like 5' 22". He was hilarious! We figured he was a basketball player, but he played safety and punter for football. Go figure! I played a few games and did not win. Sam then came down and played a couple rounds. Well, we finally did win and we picked a photo frame as our prize (we would get a picture of all the grandkids to put in it). While we played our last game we also enjoyed a banana popsicle. Now it is time to rest!
We will see everyone tomorrow!
Frustration
I am back at home now. It has been a little frustrating, OK very frustrating. Just to clear up the confusion, if there is any, the injections Pop has been receiving is of a particular medication called Amifostine. This medicine is used to preserve the good cells of the lung. He was receiving two injections before radiation. After treatment yesterday, we barely made it to the room. He tried to eat some last night and ended up losing it also. Obviously, his body is rejecting this medication. They have tried a stronger anti-nausea medicine but nothing was working. If he had to do this every day he would end up dehydrated and continue to lose weight. So, I talked to the nurse yesterday afternoon and she said it was fine to refuse the injections this morning. Meanwhile, she was supposed to let the doctor know. When we arrived this morning to the appointment, he informed them that he was not taking the injections. They paged Olga, who is the radiation doctors nurse. A different nurse who works with the doctor came in and talked to us. She basically told us that there was a significant increase in the risk of developing long term damage to the lung if he could not tolerate this medicine. Some of the risks were pretty scary. There was no question in his decision. He was still nauseous at this point and said it will be what it is gonna be without that medicine. I am smart enough to know that if he continues at that rate he would end up being hospitalized for dehydration, but listening to the consequences or risks of not taking the medicine, I want to say lets try again. It is the lesser of two evils. So after more discussion the nurse told us the doctor said he REALLY wished he would change his mind but he understands if not. Ironically,this is the same doctor who said to Sonya and I, "his body, his decision."
So we will just pray that this too is part of the plan, God's plan. I debated all day about whether or not I should post this. I am still not sure it was the right thing to do but here it is. This doesn't mean I am not staying positive because once he is past the nausea I am sure I will feel much better about it, but right now it is pretty dang frustrating. I wish I could take that nausea from him and carry it myself for a while, and I am sure many of you feel the same. But it doesn't work that way. That little man Terry talked about that wears the Cancer Sucks pin, he wears it everyday. I think I need one. Shannon
So we will just pray that this too is part of the plan, God's plan. I debated all day about whether or not I should post this. I am still not sure it was the right thing to do but here it is. This doesn't mean I am not staying positive because once he is past the nausea I am sure I will feel much better about it, but right now it is pretty dang frustrating. I wish I could take that nausea from him and carry it myself for a while, and I am sure many of you feel the same. But it doesn't work that way. That little man Terry talked about that wears the Cancer Sucks pin, he wears it everyday. I think I need one. Shannon
A True Story
Been a couple days since I seen Pop but I have been keeping close tabs. Even back home there is just no way to deny the effect this journey has on a families life. But it is not necessarily always a bad deal....there are blessing along the way. Here is something I just had to share.
As you read the blog one topic keeps popping up and that is all the cool people we have met that have touched us in one way or another. As Shannon wrote recently, everyone of these folks has a story and this is so true. So it is appropriate that one of those people I met that has had a profound effect on me is named just that ....Tru Storey. His name may sound familiar to some of you because Tru is from Highlands county. I don't know all of Tru's story but what I do know is he is a character and I'm glad I met him. I had met his mother Bobby as she at one time worked for a local Agriculture company that I do business with. Now Tru is easy to pick out anywhere cause he will be the one in the building wearing camo. Although I may have met Tru somewhere before..... I really got to know him my first day at Hope lodge. In a dining room full of cancer patients you got it...he was the one wearing camo and I knew we must have something in common so we struck up conversation and begin to realize we probably knew each other. When his mother came down (she was helping Tru at Hope)we rekindled our friendship and reflected on the business we had done years ago. We laughed, joked and told stories about Pop. Tru remembered Pop giving him a sucker (lollipop) and pulling his hair or ear when he would walk by the table in the restaurant. Tru shared that he always admired Pop cause Pop had always shown him some attention.... there was something special about Mr. Weaver at the truckstop. But when Tru and I was by ourselves he shared some things that helped me understand what my Dad was going through. See...Tru has been fighting cancer a pretty good while and I must say is putting up one heck of a battle. He was in his final radiation treatments as my Dad was just getting started. Tru shared with me the secrets that helped him cope, helped him make it through when he didn't feel he could. Things that we could expect down the road. Things only a true warrior could share from his heart from his experiences on the battlefield. When I would see Tru over at treatment...or in the Lodge eating or just hanging out always wearing his camo shirt and hat....I often wondered if his choice of clothing was his way of dressing for battle. I teased him a couple times that he was wearing camo so if some of those doctors were trying to find him....he could effectively hide .... if he could get outside the building. We joked about going duck hunting in the pond across the way ... but figured it would be a fast track way to meet some nice Tampa PD.
I know this story is kinda going long.....and you probably are wondering where it is going. Well here it is. When I left the other day Tru had one more day of treatment.... he would be done Wenesday and he was "outa here". He was looking forward to a date with a tree stand in Alabama in hopes that a wayward buck deer would wander by. He most of all was looking forward to getting out of Moffitt as the Lodge was getting to him. Being inside was about to drive him crazy as only someone that spends most of their time outside could understand. So as I said my goodbyes to him the other day...I kinda figured it would be a while before I saw Tru again.
As I entered Lake Placid Family restaurant this am...early....low and behold who was there eating breakfast ..... I had to hug his neck...congratulate him on being out and share a good laugh or two. (See...there just was never any whining or complaining in Tru and my conversations.....no feeling sorry...just joy and appreciation for the day). But the main reason I share this is....Tru stopped by to see us.....to find out how Pop did yesterday afternoon (Wednesday). He didn't have too.... he just did. See...I realized at that point this morning that ... what God wanted me to see ...was that.... Hope changes people. Hope in the midst of cancer was what connected me and Tru. And I think we both have been changed. And before we when out seperate ways this morning....Tru offered that when he got back from Alabama he would go stay with Pop to give us a break. "Heck" he said....he had been there two months what was a couple days to help out....and besides he had been orientated and already knew his way around. To most it may have been a small gesture...but to me it was way more. With all that Tru had been through....that was like a warrior asking to go back out on the battlefield for a friend....to help in the only way he knew how. Tru...you may not be keeping up with this blog....but if you are ...... thank you brother for everything. You are a true friend.
And folks....that's a true story ...er Tru Storey.
I'll sign off for now.....with the most important task we have here on earth;
Love God and love people.
God Bless
TW
As you read the blog one topic keeps popping up and that is all the cool people we have met that have touched us in one way or another. As Shannon wrote recently, everyone of these folks has a story and this is so true. So it is appropriate that one of those people I met that has had a profound effect on me is named just that ....Tru Storey. His name may sound familiar to some of you because Tru is from Highlands county. I don't know all of Tru's story but what I do know is he is a character and I'm glad I met him. I had met his mother Bobby as she at one time worked for a local Agriculture company that I do business with. Now Tru is easy to pick out anywhere cause he will be the one in the building wearing camo. Although I may have met Tru somewhere before..... I really got to know him my first day at Hope lodge. In a dining room full of cancer patients you got it...he was the one wearing camo and I knew we must have something in common so we struck up conversation and begin to realize we probably knew each other. When his mother came down (she was helping Tru at Hope)we rekindled our friendship and reflected on the business we had done years ago. We laughed, joked and told stories about Pop. Tru remembered Pop giving him a sucker (lollipop) and pulling his hair or ear when he would walk by the table in the restaurant. Tru shared that he always admired Pop cause Pop had always shown him some attention.... there was something special about Mr. Weaver at the truckstop. But when Tru and I was by ourselves he shared some things that helped me understand what my Dad was going through. See...Tru has been fighting cancer a pretty good while and I must say is putting up one heck of a battle. He was in his final radiation treatments as my Dad was just getting started. Tru shared with me the secrets that helped him cope, helped him make it through when he didn't feel he could. Things that we could expect down the road. Things only a true warrior could share from his heart from his experiences on the battlefield. When I would see Tru over at treatment...or in the Lodge eating or just hanging out always wearing his camo shirt and hat....I often wondered if his choice of clothing was his way of dressing for battle. I teased him a couple times that he was wearing camo so if some of those doctors were trying to find him....he could effectively hide .... if he could get outside the building. We joked about going duck hunting in the pond across the way ... but figured it would be a fast track way to meet some nice Tampa PD.
I know this story is kinda going long.....and you probably are wondering where it is going. Well here it is. When I left the other day Tru had one more day of treatment.... he would be done Wenesday and he was "outa here". He was looking forward to a date with a tree stand in Alabama in hopes that a wayward buck deer would wander by. He most of all was looking forward to getting out of Moffitt as the Lodge was getting to him. Being inside was about to drive him crazy as only someone that spends most of their time outside could understand. So as I said my goodbyes to him the other day...I kinda figured it would be a while before I saw Tru again.
As I entered Lake Placid Family restaurant this am...early....low and behold who was there eating breakfast ..... I had to hug his neck...congratulate him on being out and share a good laugh or two. (See...there just was never any whining or complaining in Tru and my conversations.....no feeling sorry...just joy and appreciation for the day). But the main reason I share this is....Tru stopped by to see us.....to find out how Pop did yesterday afternoon (Wednesday). He didn't have too.... he just did. See...I realized at that point this morning that ... what God wanted me to see ...was that.... Hope changes people. Hope in the midst of cancer was what connected me and Tru. And I think we both have been changed. And before we when out seperate ways this morning....Tru offered that when he got back from Alabama he would go stay with Pop to give us a break. "Heck" he said....he had been there two months what was a couple days to help out....and besides he had been orientated and already knew his way around. To most it may have been a small gesture...but to me it was way more. With all that Tru had been through....that was like a warrior asking to go back out on the battlefield for a friend....to help in the only way he knew how. Tru...you may not be keeping up with this blog....but if you are ...... thank you brother for everything. You are a true friend.
And folks....that's a true story ...er Tru Storey.
I'll sign off for now.....with the most important task we have here on earth;
Love God and love people.
God Bless
TW
8 Down and 27 to go...
Hopefully, I have the number right on how many treatments have been done and how many more are left.
I made it to the Hope Lodge about 1:00pm today. The drive here was beautiful and there were no problems along the way. This was my first time getting here on my own! When I got here Sam and Shannon were sitting on the porch visiting, watching the day care children, and Shannon was eating Crunch 'n Munch. Then we went back to the room since Sam wasn't feeling the best and he went to lay down. After an hour or so we went back to the dining room and he did eat some soup. Now he is resting and so of course I found a computer to write!
His treatment in the morning is suppose to be at 8am so hopefully we will be in by lunch. Tonight we will be fed by a group at 6pm and then games afterwards at 7pm. Shannon said I need to stay for the games and try to win something! We shall see.
Shannon left about an hour ago so please keep her in your prayers as she travels home to her family.
Just went in to check on Pop and he is hard and fast asleep! So, I am going to check out what is here at the Hope Lodge and take some pictures.
I made it to the Hope Lodge about 1:00pm today. The drive here was beautiful and there were no problems along the way. This was my first time getting here on my own! When I got here Sam and Shannon were sitting on the porch visiting, watching the day care children, and Shannon was eating Crunch 'n Munch. Then we went back to the room since Sam wasn't feeling the best and he went to lay down. After an hour or so we went back to the dining room and he did eat some soup. Now he is resting and so of course I found a computer to write!
His treatment in the morning is suppose to be at 8am so hopefully we will be in by lunch. Tonight we will be fed by a group at 6pm and then games afterwards at 7pm. Shannon said I need to stay for the games and try to win something! We shall see.
Shannon left about an hour ago so please keep her in your prayers as she travels home to her family.
Just went in to check on Pop and he is hard and fast asleep! So, I am going to check out what is here at the Hope Lodge and take some pictures.
Wednesday, November 18, 2009
7 down, 28 to go
Ok, so it is the meds in the injection that definitely is making him sick. We barely made it to the room. He feels a little better now and is napping. I put a call in to Dr. Dilling, just to let him know what is going on. This medicine can not be beneficial to him if it makes him constantly sick. Dinner is being provided tonight at 5:45. I hope Pop is up to attending. He also asked them to change his Friday appnt. to early morning so he could head home earlier. He may just make it back in time for lunch on Friday. I sure hope so. Shannon
Everyone has a story...
Everyone has a story. Yesterday when I went back with dad to the area where they do his vitals and observe him after his injections, the lady who had been waiting on chemo with her son was in there. Do you remember me talking about the little boy who was waiting with his mother to have chemo, and a volunteer was taking him to get lunch? This little boy was about nine and was very restless while his mother was waiting to have chemo. She told him to get comfortable because it was gonna take another four hours. That was over a week ago. Yesterday, like I said, the mother was in the same holding area with dad. So, today I was telling him that she was the mother of the little boy I had been talking about. The nurse, who is a middle aged man, says to us "The story gets even better than that". This little boy lost his father to cancer about 4 months before his mother was diagnosed. The catch is, she isn't even his real mother, but the only mother he has known. The nurse said that this little boy is very aware of what cancer is and fears for his mothers life. He is in school as much as possible but sometimes has to come with his mother because she doesn't have anyone to pick him up or take care of him. His teacher has started taking him home with her some to help out. She lives on a farm so has a lot to keep him busy. The nurse also said that he and the other nurses had their team meeting last week and have decided to make this little boy their project during the upcoming holidays. Granted, material things are nothing compared to having a mother and father but I know these nurses will brighten his day.
As we are discussing this child and the staff here, the nurse tells us that so many of the nurses and staff here have their own story. This particular nurse, has a 22 year old daughter who was diagnosed with leukemia when she was 2 years old. He said she was treated here and even at that time the nurses were unbelievable. He himself spent hours here as a frightened father. He said the nurses here are what inspired him to go back to school and become a nurse himself. I expect this is probably the case with alot of the staff.
As for dad, he had a very good morning. He ate a light breakfast and a sandwich for lunch with a little fruit. I told him his injections were not going to make him sick today. His response was "They're not?" , like he really believed me. We will see. I will give another update later. I just wanted to share those stories while I had time. Much Love, Shannon
As we are discussing this child and the staff here, the nurse tells us that so many of the nurses and staff here have their own story. This particular nurse, has a 22 year old daughter who was diagnosed with leukemia when she was 2 years old. He said she was treated here and even at that time the nurses were unbelievable. He himself spent hours here as a frightened father. He said the nurses here are what inspired him to go back to school and become a nurse himself. I expect this is probably the case with alot of the staff.
As for dad, he had a very good morning. He ate a light breakfast and a sandwich for lunch with a little fruit. I told him his injections were not going to make him sick today. His response was "They're not?" , like he really believed me. We will see. I will give another update later. I just wanted to share those stories while I had time. Much Love, Shannon
Tuesday, November 17, 2009
6 down, 29 to go
Where do I even begin? First of all, Sonya is headed back to LP tonight with my children in tow. I came up after lunch today and brought the kids with me in hopes to make Pop feel better. I wanted to try and break his week up some so he doesn't get so depressed. I also wanted my kids to see exactly what it is like here. It has been a rough few days emotionally for Sonya and it was obvious she needed a break. Pop has pretty much been sick for the last few days. She has been trying to get some nutrition in him and he hasn't been able to tolerate a whole lot. Thankfully, when we arrived today, they were sitting in the dining room area eating boiled peanuts. We were able to visit with him for a little while and give the kids a tour before his radiation appointment. He tolerated the peanuts pretty good. During his appointment, I went back with him and was able to talk to one of the nurses about his injections. To make a long story short, he refused them for today. We will talk to the doctor about skipping them on the days that he gets the infusion of the trial meds. and continue getting them for the rest of the week. Both in one day is just more than he feels he can handle at this time. And that is OK. If you don't believe it, come visit with the doctor that reminded us so quickly that it is his body, his decision.
During his treatment, Sonya, the kids, and I had to check things out. Of course the first stop was the cafeteria. We had a little of this and a little of that and had to finish it off with a doughnut. Out in the main lobby, we stopped and looked at artwork by cancer patients and their families. Some of it is so inspiring and I took a few pictures with my phone. Now, whether or not I will figure out how to post those pictures on this blog, remains to be seen.
After Pop came out of treatment we headed back over to the lodge. I warmed him some Scalloped Potatoes and Ham that I had brought from the restaurant. He had been saying all afternoon that he wanted a popsicle. Sonya made a quick trip to the store to buy popsicles and the kids and I put a huge dent in the sugar free Cookies and Cream ice cream while she was gone. (sorry Uncle Terry) She came back with some grape fruit bars and his favorite, banana flavored popsicles. So he ate a grape bar and then had ANOTHER bowl of potatoes and ham. So far so good with keeping it down. He seems to be resting comfortably. I read all the new comments to him before I began writing this blog. He actually asked me if I was getting on the blog when I turned the computer on. This is really the first time he has shown an interest to me. I asked if he wanted to read it and he said, "no just read it to me." But for all of you out there, he is hearing your comments.
There are actually quite a few people here from Highlands County. One checking out tomorrow and one checked in today. Sonya and I also talked to a lady and her daughter from Lake Placid. She lost a son at a young age to cancer and has been battling it herself. I really appreciate all the prayers you all have been sending but tonight I ask that you would pray for every resident here at the Hope Lodge and their families. I am sure this ugly disease affects so many more people than I will ever realize. Like Sonya said, you can't help but wonder when you see someone, what their story is. Each and every story is so inspiring.
OK, now Pop is up taking his medicine. He is singing the names of his medication. I think the codeine in the cough syrup makes him a little loopy, but....that is OK too. Love to all, Shannon
During his treatment, Sonya, the kids, and I had to check things out. Of course the first stop was the cafeteria. We had a little of this and a little of that and had to finish it off with a doughnut. Out in the main lobby, we stopped and looked at artwork by cancer patients and their families. Some of it is so inspiring and I took a few pictures with my phone. Now, whether or not I will figure out how to post those pictures on this blog, remains to be seen.
After Pop came out of treatment we headed back over to the lodge. I warmed him some Scalloped Potatoes and Ham that I had brought from the restaurant. He had been saying all afternoon that he wanted a popsicle. Sonya made a quick trip to the store to buy popsicles and the kids and I put a huge dent in the sugar free Cookies and Cream ice cream while she was gone. (sorry Uncle Terry) She came back with some grape fruit bars and his favorite, banana flavored popsicles. So he ate a grape bar and then had ANOTHER bowl of potatoes and ham. So far so good with keeping it down. He seems to be resting comfortably. I read all the new comments to him before I began writing this blog. He actually asked me if I was getting on the blog when I turned the computer on. This is really the first time he has shown an interest to me. I asked if he wanted to read it and he said, "no just read it to me." But for all of you out there, he is hearing your comments.
There are actually quite a few people here from Highlands County. One checking out tomorrow and one checked in today. Sonya and I also talked to a lady and her daughter from Lake Placid. She lost a son at a young age to cancer and has been battling it herself. I really appreciate all the prayers you all have been sending but tonight I ask that you would pray for every resident here at the Hope Lodge and their families. I am sure this ugly disease affects so many more people than I will ever realize. Like Sonya said, you can't help but wonder when you see someone, what their story is. Each and every story is so inspiring.
OK, now Pop is up taking his medicine. He is singing the names of his medication. I think the codeine in the cough syrup makes him a little loopy, but....that is OK too. Love to all, Shannon
Monday, November 16, 2009
5 down, 30 to go !
Wow , what a day! What a long day for Pop.....he started out around 7:45 this morning and wasn't finished with all of his treatments until around 2:30 this afternoon.
As I was sitting in the waiting room this afternoon ever so patiently waiting on him to come thru those exit doors, I couldn't help but taking in everything around me. There were men and women of all kinds coming and going.....husbands supporting wives, wives supporting husbands, father and daughters or sons, mothers with their daughters or sons. You can't help but wonder with every person that passes, "What's their story?" Knowing that some have been battling cancer for a while because of the tired look in their eyes, and that some were just being introduced to it because of the look of fear in their eyes! But everyone smiling, or laughing, or holding hands in support of each other. There is amazing love everywhere you look here at the Moffitt Center. Like Terry said before, God has this place in his hands with a good firm hold. God has the ball and there will be no fumbling!!!!! He is an awesome god, if you ever doubt it just come to Moffitt Cancer Center!! All I can say is WOW !!!!
There was one sight that I saw today that touched me in a way that I couldn't hold back the tears. There was a woman that was in her mid to late 40's that came in pushing a wheelchair. In this wheelchair was a girl that was probably 16 or 17 years old if I had to guess. I automatically assumed that this was a mother and daughter. The mother pushed the wheelchair to the edge of the chair and came around and lifted the girl out and helped her in the chair. The mother left the room for a short moment to take the wheelchair back to the lobby. I couldn't help but make eye contact with this sweet, frail little girl..imagining what life has to be like for her! No volleyball games, no softball games, no cheering on her football team in the stands with her friends! No homecoming dances, proms, not even just the basic things that kids at her age love to do.....My, oh my, the things we take for granted. Even though she looked like she barely had the energy to hold her head up and her eyes lined with dark circles, she smiled at me so preciously as if to say "I'm Ok"! Ok, her comes the tears....or so I thought. About that time, back in walked her mom, and sat down beside her. This precious teenager laid her head over on her moms shoulder, grabbed her by the hand and told her "Thanks Mom, I Love You". You see this is how I knew it was mother & daughter. Now the tears really started flowing....thinking all of the teenage girls, Everywhere!, needed to see this sight! So much love and appreciation this little under-priviledged girl had....but then I started thinking! She's not so under-priveledged....she knows God ! and because of her disease, whatever it be...learned to love and appreciate the small stuff.....you see, he has his way of teaching us that its not about material things! It's about our love for him and treating and loving the people around us the way he loves us! Unconditional Love!
Now, while sitting there waiting on Pop, and being nosy(yes me) listening in on someones conversation about finding water on the moon, my chair moves....and it moves again...all I can think at this point is "I dont know what this boy in this chair behind me is doing but he needs to quit". And it moves again....Ok, now I turn around to look back at him to see whats up and I catch a glimpse of something out of the corner of my eye that just about scares me silly...and guess what..IT'S POP! He was the one moving my chair the whole time! So now the better part of the waiting room is laughing because of knowing what was going on!! Laughs on me.... Even going thru the treatment and the battles that Pop is going thru...Yes, he is still a prankster! Gotta Love It!
Upon our arrival back to the Hope Lodge we find that Terry has warmed us up lunch....Leftover round steak and rice & gravy. And yes it is still delicious! Pop ate it up!!!! But all of a sudden were headed to the dip in the rollercoaster...to the room he headed for it all to come back!!!
If we could just get rid of this nausea!! Just two weeks ago it was if we could just get rid of this cough, well the cough is gone! And I expect within the next few days the nausea to ease up! And you say, whats next!!! Not sure but I do know that we will be prepared to fight that battle also!
Well, while Pop was resting I thought I would have the bright idea to go to the cafeteria to see if they have any boost or ensure that is "fruity" and possibly have it made into a smoothie! You see I'm up for anything at this point to get him some nutrition!! Well, no luck, the cafeteria does not sell ensure or boost BUT....the sweet gentleman behind the counter says he can make a smoothie with protein powder( an extra 1200 calories) added to this smoothie, just pick a flavor! HA! So I pick banana, but its not just banana its kiwi banana! Sounds good to me and Pop loves banana flavored anything! Well, all is well until this sweet gentleman hands me the smoothie!!! It's PUKE GREEN! All I could do is laugh!!! I can hear it now, dad saying "You expect me to drink this ****" And yes that is what it looked like BABY ****! Needless to say, it is still in the freezer, I havent even had the nerve to show it to Pop yet, let alone ask him to drink it!!!!
I let him sleep until about 6:30! I woke him up and asked him to come down to dinner, not knowing we already had dinner cooked for us downstairs! Up he jumped, got dressed in a hurry like he knew something good was going to be taking place! Well, sure enough upon entering the dining area we were asked just to take a seat and we would be served! Turkey, Ham, Dressing, Corn, Sweet Potato Souffle, and all the trimings! YUMMY!
Once again there had been a special group of people that came in, cooked a full meal, and were there to share their survival stories....The name of this group "Eager Beavers"! This group was started by a girl that had lost her mother to breast cancer! Her way to pass on her moms love and message, by helping cancer patients of all kinds in their time of need! Thanks Eager Beavers!
Right now, Pop is down for the night! Had a great dinner, but most of all kept it down! And he is snoring, so I think that means he's sleeping good. *L* Looking forward to a easier day tomorrow!
Thanks to everyone for their love, support and prayers for Pop and our family! And as Terry says so often.....Love the people around you as God loves us! Unconditionally !
Goodnight!
Sonya
As I was sitting in the waiting room this afternoon ever so patiently waiting on him to come thru those exit doors, I couldn't help but taking in everything around me. There were men and women of all kinds coming and going.....husbands supporting wives, wives supporting husbands, father and daughters or sons, mothers with their daughters or sons. You can't help but wonder with every person that passes, "What's their story?" Knowing that some have been battling cancer for a while because of the tired look in their eyes, and that some were just being introduced to it because of the look of fear in their eyes! But everyone smiling, or laughing, or holding hands in support of each other. There is amazing love everywhere you look here at the Moffitt Center. Like Terry said before, God has this place in his hands with a good firm hold. God has the ball and there will be no fumbling!!!!! He is an awesome god, if you ever doubt it just come to Moffitt Cancer Center!! All I can say is WOW !!!!
There was one sight that I saw today that touched me in a way that I couldn't hold back the tears. There was a woman that was in her mid to late 40's that came in pushing a wheelchair. In this wheelchair was a girl that was probably 16 or 17 years old if I had to guess. I automatically assumed that this was a mother and daughter. The mother pushed the wheelchair to the edge of the chair and came around and lifted the girl out and helped her in the chair. The mother left the room for a short moment to take the wheelchair back to the lobby. I couldn't help but make eye contact with this sweet, frail little girl..imagining what life has to be like for her! No volleyball games, no softball games, no cheering on her football team in the stands with her friends! No homecoming dances, proms, not even just the basic things that kids at her age love to do.....My, oh my, the things we take for granted. Even though she looked like she barely had the energy to hold her head up and her eyes lined with dark circles, she smiled at me so preciously as if to say "I'm Ok"! Ok, her comes the tears....or so I thought. About that time, back in walked her mom, and sat down beside her. This precious teenager laid her head over on her moms shoulder, grabbed her by the hand and told her "Thanks Mom, I Love You". You see this is how I knew it was mother & daughter. Now the tears really started flowing....thinking all of the teenage girls, Everywhere!, needed to see this sight! So much love and appreciation this little under-priviledged girl had....but then I started thinking! She's not so under-priveledged....she knows God ! and because of her disease, whatever it be...learned to love and appreciate the small stuff.....you see, he has his way of teaching us that its not about material things! It's about our love for him and treating and loving the people around us the way he loves us! Unconditional Love!
Now, while sitting there waiting on Pop, and being nosy(yes me) listening in on someones conversation about finding water on the moon, my chair moves....and it moves again...all I can think at this point is "I dont know what this boy in this chair behind me is doing but he needs to quit". And it moves again....Ok, now I turn around to look back at him to see whats up and I catch a glimpse of something out of the corner of my eye that just about scares me silly...and guess what..IT'S POP! He was the one moving my chair the whole time! So now the better part of the waiting room is laughing because of knowing what was going on!! Laughs on me.... Even going thru the treatment and the battles that Pop is going thru...Yes, he is still a prankster! Gotta Love It!
Upon our arrival back to the Hope Lodge we find that Terry has warmed us up lunch....Leftover round steak and rice & gravy. And yes it is still delicious! Pop ate it up!!!! But all of a sudden were headed to the dip in the rollercoaster...to the room he headed for it all to come back!!!
If we could just get rid of this nausea!! Just two weeks ago it was if we could just get rid of this cough, well the cough is gone! And I expect within the next few days the nausea to ease up! And you say, whats next!!! Not sure but I do know that we will be prepared to fight that battle also!
Well, while Pop was resting I thought I would have the bright idea to go to the cafeteria to see if they have any boost or ensure that is "fruity" and possibly have it made into a smoothie! You see I'm up for anything at this point to get him some nutrition!! Well, no luck, the cafeteria does not sell ensure or boost BUT....the sweet gentleman behind the counter says he can make a smoothie with protein powder( an extra 1200 calories) added to this smoothie, just pick a flavor! HA! So I pick banana, but its not just banana its kiwi banana! Sounds good to me and Pop loves banana flavored anything! Well, all is well until this sweet gentleman hands me the smoothie!!! It's PUKE GREEN! All I could do is laugh!!! I can hear it now, dad saying "You expect me to drink this ****" And yes that is what it looked like BABY ****! Needless to say, it is still in the freezer, I havent even had the nerve to show it to Pop yet, let alone ask him to drink it!!!!
I let him sleep until about 6:30! I woke him up and asked him to come down to dinner, not knowing we already had dinner cooked for us downstairs! Up he jumped, got dressed in a hurry like he knew something good was going to be taking place! Well, sure enough upon entering the dining area we were asked just to take a seat and we would be served! Turkey, Ham, Dressing, Corn, Sweet Potato Souffle, and all the trimings! YUMMY!
Once again there had been a special group of people that came in, cooked a full meal, and were there to share their survival stories....The name of this group "Eager Beavers"! This group was started by a girl that had lost her mother to breast cancer! Her way to pass on her moms love and message, by helping cancer patients of all kinds in their time of need! Thanks Eager Beavers!
Right now, Pop is down for the night! Had a great dinner, but most of all kept it down! And he is snoring, so I think that means he's sleeping good. *L* Looking forward to a easier day tomorrow!
Thanks to everyone for their love, support and prayers for Pop and our family! And as Terry says so often.....Love the people around you as God loves us! Unconditionally !
Goodnight!
Sonya
Nov 16 2009
Great night of rest for me and Pop. We got ready for the day and ate some breakfast ... well, I did anyway. Pop ate some cheese crackers and had a Pepsi. Said it filled him up. We visited with a lady at breakfast that has been fighting this ugly disease for over 13 years .... she mentioned it was a tough hard road and she has exhausted another clinic in treating her and is now at moffitt to look at new ways to battle this stuff. In the middle of our conversation she began to weep and said that she wouldn't change a thing about her life... even if she could .... that although times had been tough...she had met the most incredible people. People she sure she wouldn't have met and gotten to know had she not been in this battle. Here is this little lady with a tenacity about her that just couldn't be denied. A wave of admiration came over me ...... what a blessing she was to me this morning .... before most folks had even had their coffee. Pop even teased her about being from New Jersey as they were talking about Bucs football. Seemed they were pulling for the dolphins so that tickets this coming Sunday would be easier and cheaper to get. She invited us to the Bucs vs. Saints ball game this coming Sunday.... Pop declined said he hoped to be home watching it on TV
Pops color was good this morning and other than getting a little winded walking to treatment he looked to feel as good as expected. Check in was normal and we visited with friends we had met at Hope. It seemed the whole lodge was there getting treatment this morning. Gonna be a long day with infusion treatment and radiation following ... so ramp up your prayers today. Thank you all for the kind words of encouragement keep'em coming. And while your at it ...lets remember to keep loving God and loving people.
TW
Pops color was good this morning and other than getting a little winded walking to treatment he looked to feel as good as expected. Check in was normal and we visited with friends we had met at Hope. It seemed the whole lodge was there getting treatment this morning. Gonna be a long day with infusion treatment and radiation following ... so ramp up your prayers today. Thank you all for the kind words of encouragement keep'em coming. And while your at it ...lets remember to keep loving God and loving people.
TW
Sunday, November 15, 2009
One down six more to go
Pop and I headed back to the Hope Lodge about 5pm after Shannon fed him a great early supper. The trip was uneventful and we talked mostly about football and regular guy things. I know this upcomng week was worrying Pop a little as he was quiet but he did comment at one point that he thought it is probably gonna get worse before it gets better. I told him we probably shouldn't dwell on that because we really didn't know what was ahead and for all we know it was already as bad as it was gonna get. Why worry about what we didn't know ... and what we couldn't control. Most of the conversation was light and I was glad he had no nasea ....... count that as my first prayer answered.
Once we arrived at Hope we "moved in" meaning we got our luggage up and put the meals Shannon made us in our fridge downstairs. We breifly spoke to some friends we had met here and Pop teased Bobbi that she was in the same place .... on the same computer when he left Friday. He just couldn't help himself. I busied myself with some homework I needed to finish and Pop rested while waiting for the Sunday night game to come on. After about an hour Pop asked if i wanted to go downstair to eat a little supper. I agreed and we went down and finished off his and Sonyas Red Lobster leftovers. ummmm ummmm 3 day old microwave heated shrimp. *L* I didn't complain and he ate well. Back to the room and to bed. I'm finishing up the work I needed to do and now headed to bed as Pop is resting well. Wonder what tomorrow will bring?
I bet if we make our priority to love God and love people ..... it will be ok.
TW
Once we arrived at Hope we "moved in" meaning we got our luggage up and put the meals Shannon made us in our fridge downstairs. We breifly spoke to some friends we had met here and Pop teased Bobbi that she was in the same place .... on the same computer when he left Friday. He just couldn't help himself. I busied myself with some homework I needed to finish and Pop rested while waiting for the Sunday night game to come on. After about an hour Pop asked if i wanted to go downstair to eat a little supper. I agreed and we went down and finished off his and Sonyas Red Lobster leftovers. ummmm ummmm 3 day old microwave heated shrimp. *L* I didn't complain and he ate well. Back to the room and to bed. I'm finishing up the work I needed to do and now headed to bed as Pop is resting well. Wonder what tomorrow will bring?
I bet if we make our priority to love God and love people ..... it will be ok.
TW
Friday, November 13, 2009
Football Game
Pop was able to make it to the football game and what a game! Lake Placid won 41-6. It was great having Pop there!
Friday, November13
Well some say that Friday the 13th is a day of bad luck. Not here!!!!
Pop woke up this morning feeling great. He made a few phone calls to check on things at home (gotta make sure those Ribs are under control- Mr. Buddy, I'm not sure why he doesn't know that already..I think he doesn't trust you ~ LOL.). Really it is that he is not liking that he is here and not hanging out at the grill. It is difficult being away from the restaurant on any day but especially a Friday...
After he was up and moving around a bit we headed down to the dining area and cooked him some eggs and he had a very healthy breakfast. Boy what a change from yesterday morning!} He is feeling well and ready to head home this afternoon. He has already been talking about that football game tonight.
We both slept well last night other than being woke up by Samantha when she got off work at like 11:00! No just kidding Sammie....he enjoyed poking fun at you even though it was late. It is so great to see him feeling well again! Still enjoying being at the top of the rollercoaster! Let us all praise God today for the blessings we have been given!
Pop woke up this morning feeling great. He made a few phone calls to check on things at home (gotta make sure those Ribs are under control- Mr. Buddy, I'm not sure why he doesn't know that already..I think he doesn't trust you ~ LOL.). Really it is that he is not liking that he is here and not hanging out at the grill. It is difficult being away from the restaurant on any day but especially a Friday...
After he was up and moving around a bit we headed down to the dining area and cooked him some eggs and he had a very healthy breakfast. Boy what a change from yesterday morning!} He is feeling well and ready to head home this afternoon. He has already been talking about that football game tonight.
We both slept well last night other than being woke up by Samantha when she got off work at like 11:00! No just kidding Sammie....he enjoyed poking fun at you even though it was late. It is so great to see him feeling well again! Still enjoying being at the top of the rollercoaster! Let us all praise God today for the blessings we have been given!
Thursday, November 12, 2009
Late evening Nov. 12
Alright, Sonya here now! Thanks Shannon for updating the post for me earlier....I didn't have any good news this morning and when Pop came out of his treatment feeling so well and wanting to go eat I knew we needed to go right then. It was great to be at the top of the roller coaster again and thought I needed to share it with everyone ASAP!
Dinner went well, Pop didn't clean his plate but that's quite alright. At least he did eat and was feeling better. I think this new nausea medicine is working, YEAAAA. He is in his room now, I tried to get him to come down and play bingo in the dining hall but I don't really think that is his thing.....I even told him there was a bunch of women down there but.....LOL!
I am feeling like we are going to have a good night! I think he is ready to get to bed because he is looking forward to tomorrow. He is anxious to get headed home and really glad that he will be home in time to see Nevada and the rest of the LP Dragons play some football. So all you fans and players, be looking for him cause he will be there cheering!
As to what Shannon said earlier, this is an emotional roller coaster for all of us & him, but as long as we get to see the top from time to time we will get thru this. Especially with the help from our Lord above and all the wonderful friends and family we have out there sending out their prayers and support. You guys really dont know how special yall are!!! We love you dearly ;}
As for now I am signing off and gonna head off to bed, I am really looking forward to tomorrow myself!
Dinner went well, Pop didn't clean his plate but that's quite alright. At least he did eat and was feeling better. I think this new nausea medicine is working, YEAAAA. He is in his room now, I tried to get him to come down and play bingo in the dining hall but I don't really think that is his thing.....I even told him there was a bunch of women down there but.....LOL!
I am feeling like we are going to have a good night! I think he is ready to get to bed because he is looking forward to tomorrow. He is anxious to get headed home and really glad that he will be home in time to see Nevada and the rest of the LP Dragons play some football. So all you fans and players, be looking for him cause he will be there cheering!
As to what Shannon said earlier, this is an emotional roller coaster for all of us & him, but as long as we get to see the top from time to time we will get thru this. Especially with the help from our Lord above and all the wonderful friends and family we have out there sending out their prayers and support. You guys really dont know how special yall are!!! We love you dearly ;}
As for now I am signing off and gonna head off to bed, I am really looking forward to tomorrow myself!
updates to the update
Since both Weavers girls had a say....and since I am the oldest, let me add to it. God is amazing everyday....but today he treated me a little special. We promised to share the God things so here goes.
Hearing the "good" news this afternoon was such a relief...cause in reality its been a rough day. My office was suffocating me as I spent most of the day trying to focus on getting customers and prospects taken care of. Hearing Pop was having a bad day was keeping me distracted ......... and honestly .......... tearing my heart to pieces. Needing to get some air this afternoon, I went up town to check the mail and as I was driving, I was listening to a cd made last night of band practice (the tech group uses it to help plan the services). The last song for this coming Sunday, Everlasting God, came on. The band ....kinda put their own touch on it by slowing it down and making it really worshipful. It sounded good last night but I was tired and really didn't think much about it. As it came on....unexpectedly.......the flood gates of my emotions just opened up...... so i just drove around a little while to have a private man cry. (Yes ladies...some of us have those but be assured I made sure to avoid all stop signs and stop lights so there was no chance of anyone seeing me. ) The words of the song were so cystal clear.....so pure.....and Dawns vocal just led me straight into worship of our everlasting God. As the song went...Strength will Rise as we wait upon the Lord....Our God.....our Hope, our Strong Deliverer. I was needing some strength at this point and my mind came to this blog...."strength for the journey"...."determined to fight" and it all made sense. God had given me a song last night that He knew I would need today. I just rode around a few minutes ..... crying .... worshipping ... crying ..... worshipping ..... and praying. God have mercy.... give Pop strength as we wait upon the Lord. I prayed selfish prayers like..... make Pop feel better..... make Pop hungry......let Pop eat and not feel nausea ..... Please God, give Pop some relief. I knew he was in his radiation treatment at the time......and he has been weak following these treatments this week so I just prayed....not sure how long...but awhile. I did a few more errands and as I pulled back up to my office around 5 pm Shannons call came in that Pop had finished treatment...and was on his way to Red Lobster to eat. I wave of relief and a bit of jealousy as when I was there earlier in the week I had to settle for some tv dinners for lunch.
It never ceases to amaze me...like I said the other day.....God never misses an appointment.....nor does he ever grow weary....lucky us huh? He is an Everlasting God ...... and let me invite you to come to FBCLP Sunday..... you will probably hear the song that made a grown man cry....and I promise you will get the chance to thank Him for the good things He has done. OH...and BTW 3 down 32 more to go......focusing on the out there. Until next time....Let's try our best to Love God and love people.
TW
Hearing the "good" news this afternoon was such a relief...cause in reality its been a rough day. My office was suffocating me as I spent most of the day trying to focus on getting customers and prospects taken care of. Hearing Pop was having a bad day was keeping me distracted ......... and honestly .......... tearing my heart to pieces. Needing to get some air this afternoon, I went up town to check the mail and as I was driving, I was listening to a cd made last night of band practice (the tech group uses it to help plan the services). The last song for this coming Sunday, Everlasting God, came on. The band ....kinda put their own touch on it by slowing it down and making it really worshipful. It sounded good last night but I was tired and really didn't think much about it. As it came on....unexpectedly.......the flood gates of my emotions just opened up...... so i just drove around a little while to have a private man cry. (Yes ladies...some of us have those but be assured I made sure to avoid all stop signs and stop lights so there was no chance of anyone seeing me. ) The words of the song were so cystal clear.....so pure.....and Dawns vocal just led me straight into worship of our everlasting God. As the song went...Strength will Rise as we wait upon the Lord....Our God.....our Hope, our Strong Deliverer. I was needing some strength at this point and my mind came to this blog...."strength for the journey"...."determined to fight" and it all made sense. God had given me a song last night that He knew I would need today. I just rode around a few minutes ..... crying .... worshipping ... crying ..... worshipping ..... and praying. God have mercy.... give Pop strength as we wait upon the Lord. I prayed selfish prayers like..... make Pop feel better..... make Pop hungry......let Pop eat and not feel nausea ..... Please God, give Pop some relief. I knew he was in his radiation treatment at the time......and he has been weak following these treatments this week so I just prayed....not sure how long...but awhile. I did a few more errands and as I pulled back up to my office around 5 pm Shannons call came in that Pop had finished treatment...and was on his way to Red Lobster to eat. I wave of relief and a bit of jealousy as when I was there earlier in the week I had to settle for some tv dinners for lunch.
It never ceases to amaze me...like I said the other day.....God never misses an appointment.....nor does he ever grow weary....lucky us huh? He is an Everlasting God ...... and let me invite you to come to FBCLP Sunday..... you will probably hear the song that made a grown man cry....and I promise you will get the chance to thank Him for the good things He has done. OH...and BTW 3 down 32 more to go......focusing on the out there. Until next time....Let's try our best to Love God and love people.
TW
Update
Hi everyone, Shannon here. Just talked to Sonya and she asked me to post an update because she is busy driving. " To where?" you might ask. Pop came out of treatment and announced he wanted to go to Red Lobster to eat. He saw the radiation doctor today and his assistant. Good news is he still got the injections because the doctor prescribed him a stronger medication for the nausea. This one is sublingual, and apparently works well because he is headed to Red Lobster. May sound like we are spoiling him but as long as he continues to eat well, that is all that matters. A gentleman named Jim, who is a dear friend, told me from the beginning that this would be an emotional roller coaster. Wow, was he right. I told Sonya to tell him that with each treatment, injection, and sick feeling he gets, to try to think to himself that is one more football game, or volleyball game, or high school graduation, or college graduation, or maybe even wedding that he will get to attend. So for now I am back at the top of this roller coaster not looking down. Sonya I am glad you didn't have to face the doctor today, and that he made the decision that we think he should have. I wouldn't want you to cry again. LOL
Thank you for letting me unload. This blog has been very helpful for me. Thanks for listening. Let you know more later, and hopefully Nevada will be able to look up in the stands tomorrow night and see his Pop there cheering for him.. Gotta go feed the football players now. Thanks Mr. Stidham for making it possible. :=)
Thank you for letting me unload. This blog has been very helpful for me. Thanks for listening. Let you know more later, and hopefully Nevada will be able to look up in the stands tomorrow night and see his Pop there cheering for him.. Gotta go feed the football players now. Thanks Mr. Stidham for making it possible. :=)
November 12, 2009
Sitting in the waiting area while treatment # 3 is taking place.
Pop slept pretty good last night but was still bouting nausea. He woke up this morning with great intentions of getting outside and getting a little exercise. As soon as he got up and moving he decided to get a shower, while in the shower he started feeling very nauseous again. His big plans of getting outside were shot down almost immediately. After getting sick he decided he needed to lay back down. For about another two hours every time he tried to get up he felt very sick again and would have to lay back down. I can tell he is now getting frustrated. He expressed to me that he was going to skip the injections today.He feels that these injections are what's making him so nauseous. He is worried that if he continues to feel sick and not eat that he will continue to get weak. I talked to him about letting the doctor know and having the doctor change his nausea meds. Maybe he needs stronger meds. He wants to know for himself if it is the radiation or the injections that has him so sick. He says he is absolutely miserable. If you know Pop well, then you know he is not accustomed to this sick feeling. He has been fairly healthy all of his life.
After resting for a few hours he was finally able to actually get up and eat lunch before his treatment. He had a salad and chicken stir-fry. He wasn't very talkative and seemed a little depressed, and almost immediately after eating felt sick to his stomach again. Sooo...back to the room we headed for him to lay down.
Fortunately about thirty minutes before having to be at the radiation center he came out and said he wanted to try to spend a few minutes outside before his treatment. So we got ready and headed out. Man the weather sure is nice...I just wish he felt better so he could enjoy it. Fortunately we see the doctor tomorrow and I feel comfortable that once he sees the doctor that they will make the necessary changes so that he can feel better.
Thank you to all who is praying for him and for us ( the family). I have to constantly keep reminding him and myself that we will get thru this...we just have to continue to fight and have faith in the good man in charge! I will update again in a few hours to let everyone know if he got his way with the doctor!!!!! Hopefully he didn't make him cry! LOL (Inside Joke)
Pop slept pretty good last night but was still bouting nausea. He woke up this morning with great intentions of getting outside and getting a little exercise. As soon as he got up and moving he decided to get a shower, while in the shower he started feeling very nauseous again. His big plans of getting outside were shot down almost immediately. After getting sick he decided he needed to lay back down. For about another two hours every time he tried to get up he felt very sick again and would have to lay back down. I can tell he is now getting frustrated. He expressed to me that he was going to skip the injections today.He feels that these injections are what's making him so nauseous. He is worried that if he continues to feel sick and not eat that he will continue to get weak. I talked to him about letting the doctor know and having the doctor change his nausea meds. Maybe he needs stronger meds. He wants to know for himself if it is the radiation or the injections that has him so sick. He says he is absolutely miserable. If you know Pop well, then you know he is not accustomed to this sick feeling. He has been fairly healthy all of his life.
After resting for a few hours he was finally able to actually get up and eat lunch before his treatment. He had a salad and chicken stir-fry. He wasn't very talkative and seemed a little depressed, and almost immediately after eating felt sick to his stomach again. Sooo...back to the room we headed for him to lay down.
Fortunately about thirty minutes before having to be at the radiation center he came out and said he wanted to try to spend a few minutes outside before his treatment. So we got ready and headed out. Man the weather sure is nice...I just wish he felt better so he could enjoy it. Fortunately we see the doctor tomorrow and I feel comfortable that once he sees the doctor that they will make the necessary changes so that he can feel better.
Thank you to all who is praying for him and for us ( the family). I have to constantly keep reminding him and myself that we will get thru this...we just have to continue to fight and have faith in the good man in charge! I will update again in a few hours to let everyone know if he got his way with the doctor!!!!! Hopefully he didn't make him cry! LOL (Inside Joke)
Wednesday, November 11, 2009
Day 34 down, 33 left!
May sound crazy but this is what has been the topic of conversation this evening!Pop is counting down in hopes to make this all go faster. Looking toward the future instead of fretting on today. Pop finished his 2nd radiation treatment around 5:30 this afternoon. He was a little weak and shaky but after getting back to the room he rested for just a minute and decided he really needed to eat! We went to the dining area and found a group of fraternity brothers and their sisters fixin up some spaghetti! And Terry and Toni, as you probably can relate with this, when they were done they had enough to feed the whole Moffitt center.....and boy did it smell delicious. Of course Pop had to tease the girls about standing and watching the guys cook....I thought it was great! Not sure if it was because these college kids had taken the time to be so generous as to come here and offer up their time to serve or if he was just hungry but whatever so worked....He ate TWO big helpings of spaghetti and salad! I was just proud to see him eating and when he went back for seconds I was gleaming with joy! Praise God, this is just what we needed tonight! I informed the young girl sitting next to us that they were to come back every night and cook so that he would eat ~ J/K :) She said she would sure do it if it kept him healthy. I think Pop eating so well made her day as much as it made mine.
While eating dinner I pointed out to him that the ceiling tiles in the dining room had been painted by children, really neat looking at all the talent these children have. He mentioned we could do that in the restaurant...what a great idea! He said we could buy new cases of these ceiling tiles and maybe get with the schools and let the kids of LP show us their talent! Once again everywhere you look in this place you see God's work!
He eventually came back to the room with a full belly and bedded down. Still feeling a little nausea but has kept everything down. He told me that tomorrow he wanted to get outside some and get a little exercise and sunshine. There is a big back porch here that has a daycare right next to it, you can actually sit on the porch and watch the kids play on the playground. I mentioned that to him and he said that he would love that. Hopefully the weather will be pretty!
Wow, I'm sitting here updating this blog and watching the CMA awards, thinking that he is asleep and he asks me to turn up the TV. I don't think I can ever remember him telling me to turn the TV up.....its usually "would you turn that down!" Really glad that he is at least listening to this beautiful music. It's funny how all of these songs have a different meaning to me tonight!
Nov 11, 2009
Peaceful night with good sleep. Man Pop can sleep!
Its 10 am and we had some breakfast earlier with the rest of the good folks at the Hope Lodge. Folks fixing breakfast for each other, eating and fellowshiping.....discussing their plans (procedure and treatments) for the day. Uncanny optimism here....guy sitting next to me was giggling through breakfast but he was in obvious pain. He had a button that said "Cancer sucks!". I know a little crude but true! He has earned the right to wear it...I promise! We talked about everything from airboats to treasure hunting. This place kinda feels familiar as it reminds me of the college days when I lived in the fraternity house......ok ok not completely but maybe just a little. You have your own private room and bathroom but everything else is communal. Folks coming and going....like we used to do for class. Went plundering this morning cause I was sure they had a keg closet hidden like the old AGR house at UF. *LOL*
Pop was in a good mood and we shared a laugh or two this am and now he is resting again. Said he felt good...just "washed out" . "Washed out" is becoming a common expression and everytime I hear it....I think.....well lets hang him up to dry now that he's been washed out. Guess I got aweird sense of humor. For the meantime...i'm gonna let him sleep.
Oh btw there are several folks from Highlands county here....stayed up late chatting with them last night. It was a chance to meet some neighbors and renew some old frienships...folks we haven't seen in a while. Some problably relatives and old friends of folks reading this blog. Small world. Highlands county is well represented here at the house! Until later.....keep lovin God and lovin people.
Its 10 am and we had some breakfast earlier with the rest of the good folks at the Hope Lodge. Folks fixing breakfast for each other, eating and fellowshiping.....discussing their plans (procedure and treatments) for the day. Uncanny optimism here....guy sitting next to me was giggling through breakfast but he was in obvious pain. He had a button that said "Cancer sucks!". I know a little crude but true! He has earned the right to wear it...I promise! We talked about everything from airboats to treasure hunting. This place kinda feels familiar as it reminds me of the college days when I lived in the fraternity house......ok ok not completely but maybe just a little. You have your own private room and bathroom but everything else is communal. Folks coming and going....like we used to do for class. Went plundering this morning cause I was sure they had a keg closet hidden like the old AGR house at UF. *LOL*
Pop was in a good mood and we shared a laugh or two this am and now he is resting again. Said he felt good...just "washed out" . "Washed out" is becoming a common expression and everytime I hear it....I think.....well lets hang him up to dry now that he's been washed out. Guess I got aweird sense of humor. For the meantime...i'm gonna let him sleep.
Oh btw there are several folks from Highlands county here....stayed up late chatting with them last night. It was a chance to meet some neighbors and renew some old frienships...folks we haven't seen in a while. Some problably relatives and old friends of folks reading this blog. Small world. Highlands county is well represented here at the house! Until later.....keep lovin God and lovin people.
Great cause
Here is a note from Terry:
Not sure you can see it but the kitchen and dining area of the hope lodge was donated by hooters. So folks they not only have great food and great atmosphere they donate to great causes. Good reason to visit and partake in some wings.
Tuesday, November 10, 2009
Shannon's Final Thought for Nov 10
Made it home, and as I was driving I kept thinking that in a building full of suffering, God's presence is SO strong. Before I left dad said "one down, 34 more to go..." I responded with "don't look at the right here and now, turn your focus to out there, down the road." His response was "it's raining out there" :) Just like him.
November 10, 2009 3:50
Sitting in waiting room outside of radiation, waiting on dad to finish with his radiation. We got checked into the Hope Lodge, went through orientation, so Terry said that means we are no longer disoriented.... hmmmm. We learned all the rules and are quite sure that we are not gonna be able to follow all of them, so... we are hoping not to get caught. Failure to follow the rules are grounds to be discharged from the Hope HOuse so pray for the Weaver family. LOL
This morning went well, still no nausea and had a good lunch. Not sure if it was good food or the atmosphere because he convinced us to take him to Hooters for lunch. Will try to post pictures later. (of the Hope Lodge, not Hooters)
It is now 6pm and Dad is resting in his room. I'm gonna let him rest a little while before trying to convince him to eat something. I will share some thoughts to pass the time.
We sure didn't expect it to take until 5pm to finish the radiation treatment but it did and I am learning that expectations are way over-rated. Just go with the flow. I am also learning....or being reinforced in my belief that Jesus is the only constant in this world. He is never late to an appointment.....doesn't have a lot of bogus rules...and never keeps you waiting in a waiting room. I do have to say though seriously.....this (Moffitt and the Hope Lodge)place is amazing. I told someone the other day its not a natural place...its supernatural. As I walk the halls of the lodge today I noticed each room is "donated" by someone or some organization. It made me wonder....whats their story.....how were they led to contribute to this cause. Shannon and I discussed how we felt so ashamed that we both know people that have walked this road and we never gave it much thought.......yea we felt for them....prayed for them....but really didn't appreciate what they or their loved one were going through. I pray that we never do that again.
This whole campus is full of wonderful people who roll up their sleaves and go to battle everyday with this disease called cancer. Its not prejudice...Folks from every walk of life and from every age group battling for their lives. Every test they take having the potential of being their final exam. We always talk about wanting to be in the middle of where God is working......take a two hour ride and I can give you a tour of where my God is showing His presence through His people. You can see it.....you can feel it. And its special.
Special request: Shannon has headed back to LP tonight so pray for her travel mercies and as for each of you ....take one hour at a time and try to love one another. (I promise to try to post some pics of this really cool place later)
This morning went well, still no nausea and had a good lunch. Not sure if it was good food or the atmosphere because he convinced us to take him to Hooters for lunch. Will try to post pictures later. (of the Hope Lodge, not Hooters)
It is now 6pm and Dad is resting in his room. I'm gonna let him rest a little while before trying to convince him to eat something. I will share some thoughts to pass the time.
We sure didn't expect it to take until 5pm to finish the radiation treatment but it did and I am learning that expectations are way over-rated. Just go with the flow. I am also learning....or being reinforced in my belief that Jesus is the only constant in this world. He is never late to an appointment.....doesn't have a lot of bogus rules...and never keeps you waiting in a waiting room. I do have to say though seriously.....this (Moffitt and the Hope Lodge)place is amazing. I told someone the other day its not a natural place...its supernatural. As I walk the halls of the lodge today I noticed each room is "donated" by someone or some organization. It made me wonder....whats their story.....how were they led to contribute to this cause. Shannon and I discussed how we felt so ashamed that we both know people that have walked this road and we never gave it much thought.......yea we felt for them....prayed for them....but really didn't appreciate what they or their loved one were going through. I pray that we never do that again.
This whole campus is full of wonderful people who roll up their sleaves and go to battle everyday with this disease called cancer. Its not prejudice...Folks from every walk of life and from every age group battling for their lives. Every test they take having the potential of being their final exam. We always talk about wanting to be in the middle of where God is working......take a two hour ride and I can give you a tour of where my God is showing His presence through His people. You can see it.....you can feel it. And its special.
Special request: Shannon has headed back to LP tonight so pray for her travel mercies and as for each of you ....take one hour at a time and try to love one another. (I promise to try to post some pics of this really cool place later)
Monday, November 9, 2009
November 9, 2009
Just finished with 2nd week infusion of the trial meds. Got the phone call confirming that we will check into the Hope Lodge in the morning and complete Orientation. No nausea yet, just napping in the hotel room for now.
Had dinner tonight at Outback. He woke up hungry and ate very good. Still no nausea. The nurse called and said he needed to get an injection before radiation tomorrow. Not really understanding it. He has to take Benadryl, his nausea meds, and drink a liter of water before the injection. They said they don't want to compromise any more of the lung than they need to. We joked that it was an injection of sunscreen.:)
Had dinner tonight at Outback. He woke up hungry and ate very good. Still no nausea. The nurse called and said he needed to get an injection before radiation tomorrow. Not really understanding it. He has to take Benadryl, his nausea meds, and drink a liter of water before the injection. They said they don't want to compromise any more of the lung than they need to. We joked that it was an injection of sunscreen.:)
Monday, Nov. 9, 2009
Today will be an infusion day. Tomorrow will be the first radiation treatment.
"Give your entire attention to what God is doing right now, and don't get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes. Matthew 6:34
"Give your entire attention to what God is doing right now, and don't get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes. Matthew 6:34
Sunday, November 8, 2009
Family Reunion
Today there was a family reunion in Clewiston, FL. We all gathered to visit each other and enjoy a wonderful meal together. It was great to see each other again. Many stories told, lots of pictures taken, and lots of memories being made. Can't wait for the next one!
Moffitt Appointments
The first Moffitt appointment was Oct. 1st. The family met with the medical oncologist and discussed the plan of care.
The following week a PET scan was performed and then on Oct. 15th the results were discussed. Sam was diagnosed with stage 3B non small cell lung cancer. During stage 3B, the cancer can be at any size but has spread into the lymph nodes on the far sides of the chest. After the visit we all attended the volleyball game.
Family fun with lots of food and football on Saturday!
On Oct. 21st a radiation oncologist visit was scheduled and plan of care discussed.
Gator football, family fun, and lots of food once again on Saturday evening!
On Nov. 1st Sam went in for blood work, CT scan, Pulmonary Function Test, and then his first infusion of the experimental drug. Sam is a part of a clinical trial.
Nov. 2nd Sam could feel the affects of the infusion; nausea, no appetite, very tired.
Later in the week feeling a little better, eating a little more. Nov. 5th we had a family meeting and plans were made to take turns to stay with Sam in the Hope Lodge during the week.
The following week a PET scan was performed and then on Oct. 15th the results were discussed. Sam was diagnosed with stage 3B non small cell lung cancer. During stage 3B, the cancer can be at any size but has spread into the lymph nodes on the far sides of the chest. After the visit we all attended the volleyball game.
Family fun with lots of food and football on Saturday!
On Oct. 21st a radiation oncologist visit was scheduled and plan of care discussed.
Gator football, family fun, and lots of food once again on Saturday evening!
On Nov. 1st Sam went in for blood work, CT scan, Pulmonary Function Test, and then his first infusion of the experimental drug. Sam is a part of a clinical trial.
Nov. 2nd Sam could feel the affects of the infusion; nausea, no appetite, very tired.
Later in the week feeling a little better, eating a little more. Nov. 5th we had a family meeting and plans were made to take turns to stay with Sam in the Hope Lodge during the week.
Inspirational thoughts from friends and family
Sept. 18, 2009
Mr. Buddy's BBQ Ribs, or BBQ Chicken. Or how about some whole fried catfish? Thank you Mr. Buddy for filling in for Pop!(AKA Mr. Sam)
Sept. 19
Just wanted yall to know that we are praying for Mr. Sam!!!! We love you all.
Thanks to all for the support & prayers...Mr. Sam is feeling good and in good spirits!
Sept. 22
Nothing happens by pure chance or accident, and what appears to be merely fortunate or unfortunate circumstance is really the outworking of God's plans.
Family is what life is all about!
Sept. 26
Things turn out best for the people who make the best of the way things turn out
Sept. 27
Never worry about what someone has to say about you because while they are busy trying to destroy you, you are being exactly what they only wish they could be!
Oct. 1
Feels blessed to have the friends/family I have right now.
Oct. 2
ASKS!! Why Lord be so selfish when you take us off to rest, Why cant you take the bad ones first and leave us with the best?
Oct. 4
When God is all you have, this is the moment when you realize that God is all you need! Making every day a blessing, as it is only borrowed !
Oct. 7
Come on in and tell MR. Sam Happy Birthday!!
Be grateful for what you have, For as long as you have it..Fate is unpredictable & Sometimes we don't know how blessed we are until things changes :0)
Oct. 9
"We are not separate and independent entities, but like links in a chain, and we could not by any means be what we are without those who went before us and showed us the way"--Thomas Mann Can you smell those Ribs cooking?
Oct. 12
Knows that courage and determination are like muscles ... we can only strengthen them with regular use. Today's special is Smoked Sausage with Rice and Tomato Gravy!!!
Oct. 14
Is being reminded that FEARLESS is getting back up and fighting for what you want over and over again...and that even if you're scared...DO IT SCARED! Today's special is Fried Chicken Livers and Gizzards!
My love and prayers to everyone. Faith, Hope, and Love. What is life without them.
Life is like a wave, sometimes it is soothing and sometimes it will knock you down and take your breath away!
When everything seems impossible, God can make it possible, if we only believe
Thinking of all of you guys. Rememer that we love all of you very much.
Oct. 15
You know you have good friends when you see them stand shoulder to shoulder in your time of need, but when the blessing comes is when you see them shoulder to shoulder and they are on their knees! How blessed we are! Thanks for all the prayers! Todays Special: Fried Chicken, Baked Chicken, and Hamburger Steak w/ grilled onions!
Life may take you where you least expect it but always have faith that you are exactly where you are supposed to be. Pray....Pray....Pray!
Oct. 16
There is so much power in prayer. Lots of people at the grill today, including Samantha, home from Tallahassee. A few extra pounds but a great big smile on her face. Ribs, Chicken, and Catfish. Good Luck to the football team tonight!
Oct. 19
Another sweet good morning to a beautiful day! Thanks again to our wonderful friends and family for the prayers! We are so blessed to have people like you in our lives ;} Stuffed Cabbage Roll is the special of the day , homemade Chili is the soup! Finish it off with some good ole' banana pudding!
Don't tell God how big your problems are...tell your problems how big your God is.
Oct. 21
On the menu today: A ray of sunshine, a beaming smile, a lot of FAITH, and Goulash!
Nov. 1
Today - Take a moment to find the stillness in your soul... Be gentle to yourself... And make someones day... Because you can!
"When I bow my head tonight, there will be no me, myself, or I"
Nov. 2
At moffitt today. Final round of tests and first round of trial meds. Radiation begins next Tues. Checking out the Hope Lodge in between appointments. This whole place is very impressive.
Nov. 4
Begin with the end in mind. Focus. Find joy in the little things in life. Set an example for your children because they are always watching you. Never give up. Fight till the end. Let go and let God. This is what is running through my head today.
People use duct tape to fix everything, God used nails.
Knows that she is stronger because she knows her weaknesses, wiser because she has learned from her mistakes, and laughs more often because she has known sadness.
November 9
Sitting in a Moffitt waiting room gives a whole new meaning to people watching... along with a new appreciation of a healthy family.
Mr. Buddy's BBQ Ribs, or BBQ Chicken. Or how about some whole fried catfish? Thank you Mr. Buddy for filling in for Pop!(AKA Mr. Sam)
Sept. 19
Just wanted yall to know that we are praying for Mr. Sam!!!! We love you all.
Thanks to all for the support & prayers...Mr. Sam is feeling good and in good spirits!
Sept. 22
Nothing happens by pure chance or accident, and what appears to be merely fortunate or unfortunate circumstance is really the outworking of God's plans.
Family is what life is all about!
Sept. 26
Things turn out best for the people who make the best of the way things turn out
Sept. 27
Never worry about what someone has to say about you because while they are busy trying to destroy you, you are being exactly what they only wish they could be!
Oct. 1
Feels blessed to have the friends/family I have right now.
Oct. 2
ASKS!! Why Lord be so selfish when you take us off to rest, Why cant you take the bad ones first and leave us with the best?
Oct. 4
When God is all you have, this is the moment when you realize that God is all you need! Making every day a blessing, as it is only borrowed !
Oct. 7
Come on in and tell MR. Sam Happy Birthday!!
Be grateful for what you have, For as long as you have it..Fate is unpredictable & Sometimes we don't know how blessed we are until things changes :0)
Oct. 9
"We are not separate and independent entities, but like links in a chain, and we could not by any means be what we are without those who went before us and showed us the way"--Thomas Mann Can you smell those Ribs cooking?
Oct. 12
Knows that courage and determination are like muscles ... we can only strengthen them with regular use. Today's special is Smoked Sausage with Rice and Tomato Gravy!!!
Oct. 14
Is being reminded that FEARLESS is getting back up and fighting for what you want over and over again...and that even if you're scared...DO IT SCARED! Today's special is Fried Chicken Livers and Gizzards!
My love and prayers to everyone. Faith, Hope, and Love. What is life without them.
Life is like a wave, sometimes it is soothing and sometimes it will knock you down and take your breath away!
When everything seems impossible, God can make it possible, if we only believe
Thinking of all of you guys. Rememer that we love all of you very much.
Oct. 15
You know you have good friends when you see them stand shoulder to shoulder in your time of need, but when the blessing comes is when you see them shoulder to shoulder and they are on their knees! How blessed we are! Thanks for all the prayers! Todays Special: Fried Chicken, Baked Chicken, and Hamburger Steak w/ grilled onions!
Life may take you where you least expect it but always have faith that you are exactly where you are supposed to be. Pray....Pray....Pray!
Oct. 16
There is so much power in prayer. Lots of people at the grill today, including Samantha, home from Tallahassee. A few extra pounds but a great big smile on her face. Ribs, Chicken, and Catfish. Good Luck to the football team tonight!
Oct. 19
Another sweet good morning to a beautiful day! Thanks again to our wonderful friends and family for the prayers! We are so blessed to have people like you in our lives ;} Stuffed Cabbage Roll is the special of the day , homemade Chili is the soup! Finish it off with some good ole' banana pudding!
Don't tell God how big your problems are...tell your problems how big your God is.
Oct. 21
On the menu today: A ray of sunshine, a beaming smile, a lot of FAITH, and Goulash!
Nov. 1
Today - Take a moment to find the stillness in your soul... Be gentle to yourself... And make someones day... Because you can!
"When I bow my head tonight, there will be no me, myself, or I"
Nov. 2
At moffitt today. Final round of tests and first round of trial meds. Radiation begins next Tues. Checking out the Hope Lodge in between appointments. This whole place is very impressive.
Nov. 4
Begin with the end in mind. Focus. Find joy in the little things in life. Set an example for your children because they are always watching you. Never give up. Fight till the end. Let go and let God. This is what is running through my head today.
People use duct tape to fix everything, God used nails.
Knows that she is stronger because she knows her weaknesses, wiser because she has learned from her mistakes, and laughs more often because she has known sadness.
November 9
Sitting in a Moffitt waiting room gives a whole new meaning to people watching... along with a new appreciation of a healthy family.
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